1. Introduction

The African Population Cohorts Consortium (APCC) is committed to protecting your privacy and ensuring the security of your personal information. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you interact with our website, services, and research initiatives.

2. Information We Collect

2.1 Personal Information

We may collect the following types of personal information:

• Name and contact information
• Professional affiliations and credentials
• Research interests and expertise
• Institution or organization details
• Communication preferences

2.2 Research Data

For cohort participants and research collaborators, additional data may be collected in accordance with specific research protocols and ethical guidelines, subject to separate consent procedures.

3. How We Use Your Information

We use the collected information for the following purposes:

• Facilitating collaboration between cohort studies
• Managing membership and participation in APCC initiatives
• Communicating updates, newsletters, and relevant opportunities
• Improving our services and website functionality
• Ensuring compliance with ethical research standards
• Supporting research activities and data harmonization efforts

4. Data Protection and Security

We implement appropriate technical and organizational measures to protect your information, including:

• Secure data storage and transmission protocols
• Access controls and authentication measures
• Regular security assessments and updates
• Staff training on data protection and privacy
• Compliance with international data protection standards

5. Data Sharing and Transfers

We may share your information with:

• APCC member institutions and research partners
• Ethics committees and regulatory bodies
• Service providers who assist in our operations
• Research funders and stakeholders (in aggregated form)

Any data sharing is conducted under appropriate data transfer agreements and in compliance with applicable laws and regulations.

6. Your Rights and Choices

You have the right to:

• Access your personal information
• Request corrections to your data
• Opt-out of non-essential communications
• Request deletion of your information (where applicable)
• Withdraw consent for specific data processing activities

7. Cookies and Tracking

Our website uses cookies and similar technologies to enhance user experience and collect usage data. You can control cookie preferences through your browser settings.

8. Children's Privacy

Our website and services are not directed to individuals under 18 years of age. We do not knowingly collect personal information from children.

9. Changes to This Policy

We may update this Privacy Policy periodically. Significant changes will be communicated through our website or direct notification to affected individuals.

10. Contact Us

For questions about this Privacy Policy or to exercise your rights, please contact us at: